The role of patients in medical research - Folkemødet 2018 - Allinge
14-06-2018 13:30 - 14:30
3770 - Allinge
Biopeople, NEXT – National Experimental Therapy Partnership, Diabetesforeningen, Innovationsnetværket Brandbase, Foreningen EUPATI Danmark
Without patient participation, no research into development of new medicines. That is why loads of laws and regulation are protecting the patient as a trial participant, a research object.
However, the winds of change are blowing: Patients are increasingly assuming new roles as co-creators and co-developers of new medicines. They are invited to decision making on research priorities and trial designs to fit patient needs and lifestyles. But what are the demands made by this new role? From patients? From researchers? From clinicians? From pharmaceutical companies? From patient associations?
What are the rewards and the barriers? And what are the limits to meaningful patient engagement?
Biopeople together with a.o. NEXT Partnership organizes a debate (in Danish) on this topic with the participation of the following:
Charlotte Bredahl Jacobsen, consultant, Brandbase
- Dorthe Brogård Kristensen, Associate Professor, University of South Denmark
- Lars Østergaard, Lead Clinician, Aarhus University Hospital
- Birthe Lemley, Patient, the association Women with reproductive cancers
- Kristian Johnsen, Director, Danish Diabetes Association
- Ane Hendriksen, Managing Director, Velux Foundation
(Debate will be in Danish)
More information (in Danish): Debat: Hvad har patienterne at gøre i medicinsk forskning?