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EUPATI is moving forward and has set its objectives for 2020-2025
Biopeople

EUPATI is moving forward and has set its objectives for 2020-2025

01-05-2019

EUPATI is the only dedicated training provider for patients and patient advocates on the end to end process of medicines research and development. Educated patients are the core resource for patient involvement in medicines R&D, regulatory deliberations and other patient engagement initiatives. EUPATI is offering various activities related to patient education and engagement. EUPATI sits at the key interface between stakeholders looking to engage patients, and patients with the requisite knowled

EUPATI is a successful programme that provides education and training to increase patients' capacity and capability to understand and contribute to medicines research and development (R&D), and to improve the availability of medical information for the health interested public. This is done through a Patient Expert Training Course which has trained more than 150 patient experts to date as well as an open-access multilingual toolbox that has served more than 1.6 million users around the world to date.

EUPATI's 2020-2025 objectives are:

  • Update existing training programmes to meet the growing demand for flexible and on-demand learning pathways
  • Drive towards more solid sustainability by further diversifying funding streams, both permanent and project based
  • Grow the training portfolio to offer stratified levels of education that are available for all stakeholders involved in Patient Engagement on both an organisational and individual level
  • Establish the necessary infrastructure and governance to ensure EUPATI’s continuous sustainability on the European, National and Global level in the mid and long- term

EUPATI is seeking partnerships with partner benefits described as:

Public Partners:

  • Co-create meaningful resources together with other patient organisations, academia, regulators and industry resulting in a new climate of understanding and trust that goes beyond EUPATI alone.
  • Networking and dialogue with other partners across different disease areas and countries.
  • Ensure training is reflective of all stakeholders’ perspectives.
  • Co-design the future of patient education and engagement content.
  • Join consortia of future EUPATI driven project proposals.
  • Co-define the direction and strategy of educational content of the European Patients’ Academy.
  • Access all educational resources developed by EUPATI.
  • Receive regular updates on developments in patient engagement and training opportunities.

Private Partners:

  • Collaborate under a public-private partnership ethos of co-creation is the way to collaborate with patients and other stakeholders.
  • Co-create and contribute to the education of stakeholders to bring about meaningful and systematic patient engagement.
  • Join a truly transformational process for patients and contribute to a major global impact in the patient engagement.
  • Access to facilitated discussions and debates on medicines R&D issues in Europe with patient leaders, scientists and industry representatives.
  • Networking opportunities with patients, patient organisations, scientists, academics and industry representatives.
  • Co-create meaningful resources together with other stakeholders, academia, regulators and industry resulting in a new climate of understanding and trust that goes beyond EUPATI alone.
  • Receive regular updates on developments in patient engagement and training opportunities.
  • Access to EUPATI personnel for one-to-one or multilateral briefings.

Biopeople was instrumental in the establishement of EUPATI, EFOEUPATI and the national platform, and we continue to promote patient relations in our events and programmes.

Please do not hesitate to spread the word if you know any partners that would have interest in joining the consortium. For further information, please contact Matthew May, EUPATI Coordinator, Matthias Gottwald and Nicola Bedlington, EUPATI co-chairs.

Biopeople contacts: Per Spindler and Randi Krogsgaard

EUPATI TOOLBOX

The EUPATI Toolbox, which was launched in January 2016 contains a library of information around medicines research and development. It provides the “A-Z of medicines research and development” from lab bench to approval, drug safety and other topics. Users can utilise the Toolbox information in Danish and other languages.

This information is not medicine- or disease-specific.

EUPATI National Platforms (ENPs) model the EUPATI partnership at the country level.

EUPATI provides an increasingly active matchmaking service for members of the EUPATI partnership.

Membership is open to all, but its make-up can vary from country to country. In some countries, ENPs are set up as an informal group run by volunteers, other countries have established legal entities with formal statutes and paid staff in place. ENPs’ work includes establishing national patient education programmes, establishing charters for patient involvement, members speaking internationally at conferences and promoting education by establishing workshops on patient engagement, mini-courses or webinars. National platforms are not disease specific and as a result they bring together individuals across all areas of patient involvement.

In Denmark, EUPATI DANMARK represents the ENP.

Downloads

DownloadDownloadEUPATI_Brochure_2020-2025_vf1.pdf

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